User

Visit to the Disability Integrating Health Post and Its Effect on the Quality of Life of Children with Cerebral Palsy: A Multivariate Evidence from Sukoharjo, Central Java

Retno Dwi Rohaniyati, Harsono Salimo, Eti Poncorini Pamungkasari

Abstract

Background:  An assessment of the quality of life of children with cerebral palsy is important to be carried out, as part of the indicators of achiev­ing health service delivery goals. To faci­litate access to health services for children with dis­­abilities, the government of Sukoharjo Dis­trict esta­b­lished an integrated health post (pos­yandu) for children with disabilities called in­clu­sion cen­ters.  This study aimed to deter­mine the quality of life of children with cerebral palsy who receive ser­­­vi­ces at the inclusion center.

Subjects and Method: his was a cross sec­tional study conducted in 12 inclusion centers in Suko­harjo, Central Java. A sample of 100 child­­ren with cerebral palsy (CP) aged 4-18 years old was selected by fixed disease samp­ling. The depen­dent variable was the quality of life of CP child­ren. The independent variables were the level of gross motor function capa­bility, parental cop­ing, quality service, and freq­uency of pos­yandu visits. Gross motor func­t­ion capability was mea­sured by Gross Motor Funt­ion Classifi­cation Sys­tem (GMFCS). Qua­lity of life was measured by the Cerebral Palsy Qua­lity of Life (CP-QOL) ver­sion of the parent proxy. Data collection used ques­tion­­naire and analyzed by a multiple linear reg­ression run on Stata 13.

Results: Better quality of life of children with cereb­ral palsy was influenced by lower GMFCS levels (b= -128.72; 95% CI= -220.34 to -37.10; p= 0.006), good parental coping (b= 18.87; 95% CI= 10.85 to 26.89; p<0.001), good service quality (b= 20.79; 95% CI= 9.99 to 31.59;  p<0.001), and more frequent visits to posyandu (b= 214.86; 95% CI= 56.66 to 373.15; p= 0.008).

Conclusion: Quality of life of children with cerebral palsy is influenced by lower GMFCS levels, good parental coping, good service qua­lity, and more frequent visits to posyandu.

Keywords: quality of life, disability, cerebral palsy, integrating health post (posyandu)

Correspondence: Retno Dwi Rohaniyati, Masters Program in Pub­­lic Health, Universitas Sebelas Maret, Jl. Ir. Su­­tami 36A, Surakarta, Central Java, Indo­ne­sia. Email: retnodr16@gmail.com. Mobile: 08­15­4626 8418.

Journal of Maternal and Child Health (2020), 5(2): 193-199
https://doi.org/10.26911/thejmch.2020.05.02.09

Full Text:

PDF

References

Boling S, Tarja V, Helena M, Wifi F, Ilona AR, Leena H (2013). Measuring quality of life of Finnish children with cerebral palsy. J Pediatr Rehabil Med. (6): 1211-27. doi: 10.3109/09638288.2015.1061607 [Crossref] [PubMed] [Google Scholar]


Bright T, Wallace S, Kuper H (2018). A systematic review of access to rehabilitation for people with disabilities in low-end middle income countries. Int J Environ Res Public Health. (15): 2165. doi: 10.3390/ijerph15102165 [Crossref] [PubMed] [Google Scholar]


Carasco LR, Eser E, Hao Y, McPherson KM, Green A, Kullmann L (2011). The quality of care and support (QOCS) for people with disability scale: Develop ment and psychometric properties. Res Dev Disabil. 32 (3):1212-1225. doi: 10.1016/j.ridd.2010.12.030 [Crossref] [PubMed] [Google Scholar]


Chen KL, Tseng MH, Shieh JY, Lu L, Huang CY (2014). Determinant of quality of life in children with cerebral palsy: A comprehensive biopsychosocial approach Res Dev Disabil. (35): 520-528. doi: 10.1016/j.ridd.2013.12.002 [Crossref] [PubMed] [Google Scholar]


Gilson KM, Davis E, Reddihough D, Graham K, Waters E (2014). Quality of life in children with cerebral palsy: Implication for practice. J Child Neurology. 1-7. doi: 10.1177/0883073814535502 [Crossref] [PubMed] [Google Scholar]


Gothwal VK, Bharani S,Reddy SP (2015). Measuring coping in parents of children with disabilities: A rasch model approach. PLos ONE. 10(3). doi: 10.1371/journal.pone.0118189 [Crossref] [PubMed] [Google Scholar]


Greitane A, Ceiciniece I, Cibule L, Teibe U (2012). Influence of accessibility of services on quality of life of school children with cerebral palsy in Latvia. SHS web conferences2. doi: 10.1051/shsconf/20120200012 [Crossref] [Google Scholar]


Jankowska AM, Wlodarczyk A, Campbell C, Shaw S (2015). Parental attitudes and personality traits, self efficacy, stress and coping strategies among mothers of children with cerebral palsy. Health Psychol Rep. (3): 246-259. doi: 10.5114/hpr.2015.51903 [Crossref] [Google Scholar]


Krstic T, Oros M (2012). Coping with stress and adaptation in mothers of children with cerebral palsy. Med Pregl; LXV (9-10): 373-377. Institute for child and health care of Vojvodina, Serbia. doi: 10.2298/mpns1210373k [Crossref] [Google Scholar]


Maher CA, Toohey M, Ferguson M (2016). Physical activity predics quality of life and happiness in children and adolescents with cerebral palsy. Disabil Rehabil. (38):9. doi: 10.3109/09638288.2015.1066450 [Crossref] [PubMed] [Google Scholar]


Mohammed FM, Ali SM, Mustafa MA (2016). Quality of life of cerebral palsy patients and their caregivers: A cross sectional study in a rehabilitation center Khartoum Sudan (20142015). J Neurosci Rural Pract. 7(3): 355-361. doi: 10.4103/0976-3147.182778 [Crossref] [PubMed] [Google Scholar]


Mosadeghrad AM (2014). Factors influencing health care service quality. Int J Health Policy. 3(2): 7789. doi: 10.15171/ijhpm.2014.65 [Crossref] [PubMed] [Google Scholar]


Mosadegrad AM (2012). A conceptual framework for quality of care. Mat Soc Med. 24(4): 251-261. doi: 10.5455/msm.2012.24.251-261 [Crossref] [PubMed] [Google Scholar]


Pangestu NA, Herini ES, Haryanti F (2017). Hubungan antara pola asuh orang tua dengan tingkat kualitas hidup cerebral palsy di LSB Negeri 1 Bantul Yogyakarta. Skripsi.Univesitas Gadjah Mada. [Website]


Ramadhani AN, Adriani RB, Salimo H (2018). Path Analysis on the biopsychosocial determinants of quality of life among children with cerebral palsy. J Matern Child Health. doi: 10.26911/thejmch.2018.03.04.08 [Crossref] [Google Scholar]


Surender S, Gowda VK, Sanjay KS, Basavaraja GV, Benakappa N, Benakappa A (2016).Caregiver reported health related quality of life of children with cerebral palsy and their families and its association with gross motor function: A South Indian study. J Neurosci Rural Pract. 7(2): 223-227. doi: 10.4103/0976-3147.1786575 [Crossref] [Google Scholar]


Reinders HS, Schalock RL (2014). How organization can enhance the quality of life of their clients and access their results: the concept of QOL enhancement. Am J Intellect Dev Disabil. 119(4): 291-302. doi: 10.1352/1944-7558-119.4.291 [Crossref] [PubMed] [Google Scholar]


Zheng QL, Tian Q, Hao C, Gu J, LucasCarasco R, Tao JT, Liang ZY, et al. (2014). The role of quality of care and attitude towards disability in the relationship between severity of disability and quality of life: findings from a cross- sectional survey among people with physical disability in China. Health Qual Life Out. (12): 25. doi: 10.1186/1477-7525-12-25 [Crossref] [PubMed] [Google Scholar]

Refbacks

  • There are currently no refbacks.